PCOS Support: Resources and PCOS Support Groups to Help You Navigate Polycystic Ovary Syndrome

Let's say it like it is – PCOS can cause major distress whether it’s a recent diagnosis, or you’ve been living with – and trying your best to manage – symptoms for years. Make no mistake, it *can* get easier, but it’s by no means a linear journey, and everyone will need PCOS support of some kind from time to time. 

Hopefully, you have a loving and supportive social circle – people to listen, provide comfort and assistance where possible. However, sometimes, we need to connect with people who really understand our symptoms, and how challenging it can be navigating life with PCOS.

That in mind, keep scrolling to learn where you can find PCOS resources and PCOS support groups (both online & in-person) to help you on your journey.

PCOS Support: Resources and PCOS Support Groups to Help You Navigate Polycystic Ovary Syndrome

PCOS professionals

Perhaps it sounds obvious, but your first port of call when you’re struggling with PCOS symptoms (whether physical symptoms, such as hirsutism, or mental distress) should be your GP or health practitioner. Not only can their knowledge help to reassure you, but they can also adjust treatment methods, if need be, and refer out to specialists who can assist with specific concerns.

If you’re seeking solid PCOS facts to get a better understanding of what PCOS actually is and how you can manage symptoms, there is a wealth of helpful info on the internet – but do proceed with caution. Not every PCOS treatment claim is backed by science, and some could be incredibly damaging. Stick to the NHS website and medical practitioners (we recommend Dr Anita Mitra – otherwise known as Gynae Geek) – though, bear in mind that you cannot get answers to personal concerns from these resources.

Mental health support

If your mental health has taken a hit but therapy is not immediately accessible to you, check out Health Hub, an online therapy service that offers free 20-minute phone or video calls to anybody needing emotional or mental support. It’s run by qualified volunteer psychotherapists and counsellors, and is available to all UK adults.

Alternatively, download HearMe, an on-demand emotional wellness app that connects those needing a little support to a trained volunteer listener. Conversations are had through instant chat, and everything’s anonymous.

Worth bearing in mind that whilst these services are massively beneficial, they do not provide ongoing mental support, so if you find that poor mental health is interfering with your ability to live an enjoyable life, do contact your GP.

In-person PCOS support groups

Peer support is invaluable when you have PCOS. Being able to connect with others who share your experiences and connect with people who understand exactly what you’re going through can have a huge impact on your wellbeing.

PCOS charity Verity hosts in-person PCOS support groups up and down the country – from Cornwall to Newcastle – and they’re great for anyone looking to build a network in their local area. Visit the Verity website to find your nearest PCOS support group or, if there isn’t yet one where you live, consider starting your own.

Online PCOS support groups

Looking to find a support network from the comfort of your couch? Good news – we created The PCOS Collective on Facebook for the very reason that, sometimes, in-person meets aren’t that practical (one of the many lessons taught to us by the pandemic) and what’s often more beneficial is having a support system in your pocket.

The PCOS Collective is for Cysters with PCOS to share stories, experiences, and offer support to one another, and we’d love for you to join us.

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